Development of the Patient and Public Involvement Questionnaire for Canadian Formulary Committees

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Summary

Development of the Patient and Public Involvement Questionnaire (PPIQ) for Canadian Formulary Committees

Lee Verweel a, Rachel Goren a, Ahmed M. Bayoumi b, c, d, e,

Kelly K. O’Brien b, f, g, Elaine MacPhail h, Tamara Rader i,

James H. Tiessen a, Zahava R.S. Rosenberg-Yunger a

Canadian Health Policy, July 2021. ISSN 2562-9492 www.canadianhealthpolicy.com

ABSTRACT

Background: Limited evidence exists on how to evaluate patient and public involvement in setting priorities for healthcare within formulary recommendation committees. This needs to be addressed to create evidence-based patient and public involvement policies. Objective: To develop a Patient and Public Involvement Questionnaire (PPIQ) and describe its development. Methods: The PPIQ was developed using mixed methods including the following phases: item generation and refinement (item bank creation, user feedback sessions); sensibility testing (using Feinstein’s criteria and interviews); and pilot testing. Results: The PPIQ draft was created using a bank of 846 items. This was refined by user feedback sessions (n=7). Another group of participants (n=21) completed a sensibility questionnaire, with a median score 6 out of 7 on 80% of items indicating sensibility. Follow-up interviews (n=14) indicated the PPIQ was clear and appropriate. Pilot testing (n=14) had an average response rate of 25% and a completion time of 19:00 minutes (SD ± 13:46). Conclusions: The PPIQ may be used by agencies to evaluate patient and public involvement in Canada and assist in developing evidence-based patient and public involvement policies.

AUTHOR AFFILIATIONS

a. Health Services Management, Ryerson University, Toronto

b. Institute of Health Policy, Management and Evaluation, University of Toronto

c. MAP Centre for Urban Health Solutions and Division of General Internal Medicine, St. Michael’s Hospital, Toronto

d. Department of Medicine, University of Toronto

e. Division of General Internal Medicine, St. Michael’s Hospital, Toronto

f. Department of Physical Therapy, University of Toronto

g. Rehabilitation Sciences Institute (RSI), University of Toronto

h. Former Senior Advisor, Canadian Agency for Drugs and Technologies in Health (CADTH), Ottawa

i. Canadian Agency for Drugs and Technologies in Health, Ottawa

SUBMISSION DATE

June 14, 2021

PUBLICATION DATE

July 26, 2021

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